Harvard Medical School | Medtopicwriter

Posts Tagged Harvard Medical School

A Quest for Hope: One Woman’s Journey through Pain to Purpose and Hope

Posted by Samantha Gluck in Diseases & Conditions, Guest Contributions on March 9, 2011

Joyce Graff generously shares her personal experiences with a rare disease. Edited by Medtopicwriter. When I was 19, I married a wonderful, handsome guy with one blue eye and one grey eye. We knew he had a disease called von Hippel-Lindau (VHL), a rare genetic tumor syndrome. We knew his father had died of it, […]

Conditions and Diseases, genetic disorder, Harvard Medical School, Joyce Graff, National Organization for Rare Disorders, rare disease, Rare Disease Day, VHL, Von Hippel–Lindau disease